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Free · For patients & physicians

Find doctors who treat your condition every day

Patients don’t search by specialty — they search by diagnosis. Type a condition below and instantly find the surgeon who performs it every week, at a leading US academic medical center.

Try: colon cancer heart valve disease brain tumor SMA syndrome pancreatic cancer
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Verified specialists
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Conditions & procedures
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Leading hospitals
Who is FindMySpecialist for?
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Rare disease patients
Living with SMA, Fabry, EDS, Pompe, Gaucher, Marfan, and dozens of other rare conditions — and struggling to find a doctor who truly understands your disease.
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Chronic disease patients
Managing complex thyroid disorders, autoimmune conditions, rare cancers, or any condition requiring a specialist who goes beyond routine care and standard protocols.
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Advanced procedure seekers
Patients who need a procedure most surgeons don't perform — like scarless thyroid surgery through the mouth, robotic techniques, or minimally invasive approaches for complex cases.
Did you know?
Most patients never find out that a better, less invasive option exists — simply because their doctor didn't know about it either.
Example 1
Thyroid surgery with no neck scar
Transoral thyroidectomy is performed entirely through the mouth — no incision in the neck, no visible scar. Only a small number of surgeons worldwide perform this technique.
Example 2
Robotic Whipple for pancreatic cancer
The Whipple procedure is major surgery — but at a handful of high-volume centers it's now done robotically through small incisions, cutting recovery time significantly. Most hospitals still don't offer this.
Example 3
Face transplant for severe facial injury
Fewer than 5 US centers have active face transplant programs. Patients with severe burns or trauma who qualify may regain function and appearance — but only if they can find one of those programs.
Search by condition or procedure
Find specialists by diagnosis, condition, or specific procedure — including advanced surgical techniques most hospitals don't offer.
Curated specialist profiles
Every doctor is reviewed before listing. Profiles show what makes each specialist the right choice — their specific procedures, hospital affiliations, and whether minimally invasive options are available.
Patient community forums
Connect with others navigating the same condition. Share experiences, ask questions, and support each other — organized by condition and procedure type.
Direct referral requests
Send a referral request to any specialist — as a patient, family member, or referring physician. Use the contact details on each profile to reach the specialist's office directly.
Submit a specialist
Know a doctor with exceptional expertise in a rare condition or advanced procedure? Nominate them — we verify and list them so more patients can find them.
Always free
FindMySpecialist is completely free for patients and families. Our mission is to make specialized expertise accessible to everyone, regardless of where you live.

Conditions & procedures in our directory

Click any condition or procedure type to find a specialist

Pancreatic Cancer
Colon Cancer
Rectal Cancer
Liver Cancer
Lung Cancer
Esophageal Cancer
Mesothelioma
Brain Tumor
Aortic Aneurysm
Aortic Dissection
Heart Failure
Mitral Valve Disease
Thyroid Cancer
Scarless Thyroid Surgery
Parathyroid Disease
Prostate Cancer
Kidney Cancer
Bladder Cancer
Ovarian Cancer
Breast Cancer
SMA Syndrome
Face Transplant
Liver Transplant
Kidney Stones
Inflammatory Bowel Disease
+ many more

Ready to find your specialist?

Join hundreds of patients and referring physicians already using FindMySpecialist to find the right care — whether it's a rare disease, a chronic condition, or an advanced procedure you didn't know was possible.

Notifications
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What condition are you searching for?

Find surgeons and specialists who operate on your exact diagnosis every week — not just occasionally.

Try: colon cancer · heart valve disease · aortic aneurysm · SMA syndrome · pancreatic cancer
All
🎗️ Cancer
❤️ Heart & Vascular
🧠 Brain & Spine
🍽️ Digestive & GI
🫁 Lung & Chest
💉 Kidney & Urology
👩 Women's Health
🦴 Bones & Joints
🧒 Children's
🔬 Minimally Invasive
Important: FindMySpecialist is an informational directory only. It is not medical advice and does not constitute a doctor-patient relationship. Always consult a qualified physician before making medical decisions.
6 specialists found
Communities
👋 Welcome1
Start a new community
Share a recommendation
Found a great specialist? Post your experience to help other patients find the right doctor.
👋 Welcome Community
Be the first to share your experience
📎 Attach a photo or file (coming soon)
Direct message
Hi! Happy to chat about my experience 😊
Thank you so much for sharing your story in the forum!

Rare Disease Directory

Browse conditions from NORD's database. Click any condition to find specialists and join the patient community.

Neurological
Spinal Muscular Atrophy (SMA)
ALS (Lou Gehrig's Disease)
Duchenne Muscular Dystrophy
Becker Muscular Dystrophy
Rett Syndrome
AADC Deficiency
Friedreich's Ataxia
Huntington's Disease
Myasthenia Gravis
Charcot-Marie-Tooth Disease
Neurofibromatosis Type 1
Neurofibromatosis Type 2
Tuberous Sclerosis
Sturge-Weber Syndrome
Dravet Syndrome
Lennox-Gastaut Syndrome
Progressive Supranuclear Palsy
Multiple System Atrophy
Stiff Person Syndrome
CADASIL
Metabolic & Genetic
Fabry Disease
Gaucher Disease
Pompe Disease
Niemann-Pick Disease
PKU (Phenylketonuria)
MSUD (Maple Syrup Urine Disease)
Tyrosinemia
Homocystinuria
Organic Acidemias
Wilson's Disease
Hemochromatosis
Alpha-1 Antitrypsin Deficiency
Glycogen Storage Disease
Urea Cycle Disorders
Galactosemia
Porphyria
MELAS Syndrome
Mitochondrial Disease
Alkaptonuria
Cystinosis
Connective Tissue
Ehlers-Danlos Syndrome (hEDS)
Marfan Syndrome
Osteogenesis Imperfecta
Loeys-Dietz Syndrome
Stickler Syndrome
Pseudoxanthoma Elasticum
Cutis Laxa
Epidermolysis Bullosa
VACTERL Association
Fibrodysplasia Ossificans Progressiva
Hematologic
Sickle Cell Disease
Thalassemia
Hemophilia A
Hemophilia B
Von Willebrand Disease
PNH (Paroxysmal Nocturnal Hemoglobinuria)
Aplastic Anemia
Myelodysplastic Syndrome
Polycythemia Vera
Essential Thrombocythemia
Primary Myelofibrosis
Gaucher Disease Type 1
HLH (Hemophagocytic Lymphohistiocytosis)
Amyloidosis
Mastocytosis
Pulmonary
LAM (Lymphangioleiomyomatosis)
Pulmonary Arterial Hypertension
Pulmonary Fibrosis
Sarcoidosis
Bronchiectasis
Primary Ciliary Dyskinesia
Hypersensitivity Pneumonitis
Langerhans Cell Histiocytosis
Anti-GBM Disease
Birt-Hogg-Dubé Syndrome
Immunological
CVID (Common Variable Immunodeficiency)
SCID (Severe Combined Immunodeficiency)
XLA (X-linked Agammaglobulinemia)
MCAS (Mast Cell Activation Syndrome)
Chronic Granulomatous Disease
Wiskott-Aldrich Syndrome
DiGeorge Syndrome
Hyper IgM Syndrome
ALPS (Autoimmune Lymphoproliferative)
Periodic Fever Syndromes
Endocrine & Thyroid
Congenital Adrenal Hyperplasia
Multiple Endocrine Neoplasia Type 1
Multiple Endocrine Neoplasia Type 2
Primary Hyperparathyroidism
Addison's Disease
Autoimmune Thyroid Disease
Cushing's Syndrome
Acromegaly
Hypoparathyroidism
Kallmann Syndrome
Renal & Urological
Alport Syndrome
Polycystic Kidney Disease
Nephronophthisis
Bardet-Biedl Syndrome
Cystinuria
Primary Hyperoxaluria
Fabry Nephropathy
Gitelman Syndrome
Bartter Syndrome
FSGS (Focal Segmental Glomerulosclerosis)
Gastrointestinal
Short Bowel Syndrome
Intestinal Pseudo-obstruction
Eosinophilic Esophagitis
Primary Sclerosing Cholangitis
Autoimmune Hepatitis
Biliary Atresia
Alagille Syndrome
Hirschsprung Disease
IPEX Syndrome
Microvillus Inclusion Disease
Dermatological
Epidermolysis Bullosa
Ichthyosis
Pemphigus Vulgaris
Xeroderma Pigmentosum
Harlequin Ichthyosis
Darier Disease
Pachyonychia Congenita
Incontinentia Pigmenti
BPAG (Bullous Pemphigoid)
Linear IgA Disease

Submit a specialist

Know a doctor with deep expertise in a rare condition? Add them to the directory so patients and referring physicians can find them. We verify all submissions before listing.

Your submission has been received. Our team will verify credentials and add this specialist to the directory within 2–3 business days. Thank you for helping patients find the right care.
Condition Chats
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Find your community
Select a condition chat from the list, or create a new room for your diagnosis. Conversations are real-time and saved permanently.

Find a Medical Center

Explore specialty programs or browse 150 leading US hospitals by region and tier

For hospitals, clinics & surgical programs

Reach patients who are actively searching for your specialty

FindMySpecialist connects highly motivated patients — people who already know they need a specialist — directly with the hospitals and surgeons who can help them. These are not casual browsers. They are patients ready to seek care.

125+
Rare conditions covered
500+
Registered patients
128
Referral requests / month
10+
Verified specialists listed
Partnership options

Choose what works for your program

Free forever
Basic Listing
$0 / month
Get your specialists listed in our directory at no cost. Perfect for getting started and building visibility.
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Specialist profile in the directory
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Searchable by condition and procedure
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Referral request form
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Link to your hospital website
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Verified badge after credential check
Most popular
Featured Partner
$299 / month
Stand out at the top of search results for your specialty. Ideal for specialist centers and surgical programs.
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Everything in Basic
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Featured at top of condition search results
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Dedicated hospital/program profile page
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Highlighted in patient community forums
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Monthly referral analytics report
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Up to 5 specialists listed
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Priority verification
Full partnership
Premium Program
$799 / month
Full content and referral partnership. Best for hospitals with multiple departments and advanced surgical programs.
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Everything in Featured
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Unlimited specialists listed
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Educational articles about your procedures
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Featured in "Did You Know?" section
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Dedicated landing page per procedure
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Weekly referral report
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Co-branded patient education content
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Direct account manager

How it works

1
Submit your specialists
Tell us about your specialists, their conditions, procedures, and contact details. We verify credentials and create polished profiles within 2–3 business days.
2
Patients find you
When a patient searches for their condition or procedure — whether it's SMA, Fabry disease, or transoral thyroid surgery — your specialists appear prominently in the results.
3
Referral requests come to you
Patients and referring physicians submit referral requests directly through our platform. You receive their details, condition, and message — ready to follow up.
4
Track your impact
Featured and Premium partners receive monthly analytics reports showing profile views, referral requests, and which conditions are driving the most patient interest.

Why partner with us?

🎯
Highly targeted patients
Our users are not casual health browsers. They are patients who have a specific diagnosis and are actively searching for a specialist — the highest-intent audience in healthcare.
⚕️
Built by a physician
FindMySpecialist was built by Dr. Waleed Ageedi, a practicing physician. We understand clinical workflows, referral processes, and what patients actually need — making our partnerships meaningful, not just marketing.
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Growing rare disease community
We are actively partnering with rare disease patient advocacy organizations, Reddit communities, and Facebook groups — bringing thousands of engaged patients to our platform.

What specialists are saying

"FindMySpecialist sends us patients who already understand their diagnosis and are ready to proceed. The quality of referrals is exceptional compared to general directories."
MR
Dr. Marcus Reid
Neuromuscular Disease Specialist, Houston Methodist
"We perform transoral thyroidectomy — a procedure most patients never know exists. Being on this platform means patients who are researching scar-free options find us directly."
JW
Dr. James Whitfield
Orthopedic Surgery, UT Southwestern

Get started today

Fill out the form below and Dr. Waleed Ageedi will personally respond within 1 business day.

Thank you! Dr. Waleed Ageedi will personally reach out within 1 business day. We look forward to partnering with you.
No commitment required. We will discuss options and customize a plan that fits your program.
47
Total specialists
3
Pending review
128
Referrals this month
23
Conditions covered
Dr. Sarah Chen Pending
Pediatric Neurology · SMA, Spinal Cord Disorders · Children's Hospital of Texas · Houston, TX
Dr. Raj Mehta Pending
Metabolic Genetics · Fabry Disease, Gaucher Disease · UT Southwestern · Dallas, TX
Dr. Elena Vasquez Pending
Orthopedic Surgery · EDS, Marfan Syndrome · Mayo Clinic · Rochester, MN